Tangled Fingers Diary

It tells fortunes too...

So last night I took my son to the store in order to pick up a birthday present for a little girls party. Well. There was a new toy out. It looks like a compact but it is a little electronic toy.  You push a button on said toy it tells you your fortune. I pushed the button to see what candy sweet fortune I would get and it said...

"You can only do so much"

I busted out laughing because frankly, who would expect that from a toy?! I know a lot of people who really could use that fortune, myself included. So today after I took NJ to his party, Ziggy, the princess and I went here

We ate icecream and giggled a lot.


Yeah so the Princess got a little messy.
I am currently taking a digital Photography class. (practicum is 5 credits and I needed 6 credits in order to get Financial Aid damn college.) The upside is that this class is great. I am practicing with the camera which is why these are black and white.

And who doesn't like to take pictures?!
I will be back soon with some real updates.
A VERY heartfelt thank you to all that donated. As you know, every little bit helps!
icecreamingly,
Dee

Raising money for a very worthy cause...

 

So you may have noticed the donate box up there in the corner? Well I am trying to raise money for the Ehlers Danlos National Foundation. Why? Well. My sister was diagnosed with Ehlers Danlos Syndrome back when we were kids. She has Type 4 or the Vascular type which is viewed as the most serious type of EDS.
From my sister:

This type is generally regarded as the most serious form of EDS due to the possibility of arterial or organ rupture. The skin is usually thin and translucent with veins being seen through the skin. Minor trauma can lead to extensive bruising.

Arterial/intestinal/uterine fragility or rupture commonly arise in this type of EDS. Spontaneous arterial rupture has a peak incidence in the third or fourth decade of life, but may occur earlier. Life expectancy is shortened with a majority of individuals with the vascular type, living only into their forties! So far, only my ovary ruptured when i was 18. They saved my life that day, and hopefully I won't have any more problems.

Unfortunately EDS is not a widely known. Only 1 in 5,000 have EDS and only 1 in 100,000 have the vascular form of EDS. It is rare to find a doctor that knows about EDS. When my sister visits a new doctor for whatever reason she has to come prepared with information on EDS and allow time for the doctor to look it up.

My purpose today is to raise awareness on this and hopefully raise some donations to further research so that more can be known.

Now this is the part where you come in.

Click the donate button to donate above and for every 5.00 you donate I will put your name in a drawing to win 5 skeins of Jaeger Roma. That is 680 yards of yummy-ness in a light blue colorway. I will be taking pictures of it later today so I will be putting them up as soon as I get them. Leave me a comment letting me know how much you donated or e-mail me at mintdee @ cox . net so that I can get your name in. On September 15th I will draw the name of the lucky winner! Thank you to all that donate and remember, Every little bit helps!